Basic info
Industry
research services
Sectors
Social Assistance
Non Profit
community engagement
registrant surveys
family members
primary progressive aphasia (PPA)
FTD with motor neuron disease (also called FTD-ALS)
progressive supranuclear palsy (PSP)
Frontotemporal degeneration (FTD)
corticobasal degeneration (CBD)
Social
collaborative partnerships
rare dementia diseases
behavioral variant FTD (bvFTD)
neurological disorders
clinical study recruitment
International Contact Registry
Health Care
caregivers & friends)
North American Research Registry
de-identified data (GUID protects privacy)
online data collection portal
patient-centric research
FTD patient registry (for diagnosed persons
Date founded
2015