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FTD Disorders Registry LLC

4 employees

FTD Disorders Registry focuses on increasing awareness, and accelerating curative research for frontotemporal degeneration disorders.

Basic info

Industry

research services

Sectors

behavioral variant FTD (bvFTD)
corticobasal degeneration (CBD)
North American Research Registry
registrant surveys
Social Assistance
Frontotemporal degeneration (FTD)
caregivers & friends)
FTD with motor neuron disease (also called FTD-ALS)
International Contact Registry
Social
family members
Non Profit
online data collection portal
progressive supranuclear palsy (PSP)
community engagement
patient-centric research
Health Care
FTD patient registry (for diagnosed persons
collaborative partnerships
clinical study recruitment
de-identified data (GUID protects privacy)
rare dementia diseases
primary progressive aphasia (PPA)
neurological disorders

Date founded

2015

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