Rare Patient Voice

Rare Patient Voice connects patients and family caregivers with all types of research opportunities. We meet patients and caregivers by sponsoring and exhibiting at in-person events such as conferences, meetings, and walks. We also invite patients and caregivers to join our community by working with thousands of patient advocacy and support groups through our referral program. When you need to include the patient's voice in your research, they are ready to respond in sufficient numbers to help guide your marketing decisions. #patients #caregivers #rarediseases #chronicillnesses #healthcare #DTC #clinicaltrials #MRX #marketresearch Our goal is to provide opportunities for all patients who are interested in sharing their opinions and insights about their medical conditions. We know that the time and input of patients and caregivers is valuable. To date we have paid patients over $13 million dollars for participating in research since 2013. We work with industry partners and advocacy groups to help change healthcare, one Rare Patient Voice at a time! Proud to be included in the INC 5000 list in 2021, 2022, and 2023 as one of the fastest growing companies in the US!